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Posts Tagged ‘pre-op appointments’


4 am.

That’s when the strains of Charlie Peacock’s West Coast Diaries Vol. 1 awakened me.

They didn’t play long because I hadn’t slept well. I’d gone to bed later than desired, watching The Walking Dead’s mid-season finale (finally Rick realizes they need to join together to destroy Negan and the Saviors).

I was up at 4 am because our flight to LA left at 6 am. After a shower to wash the smell of the fire pit off of my body, I was dressed and ready to go. Eli already has his backpack on his back. I think it weighed 20 pounds, filled with his tablet, toys, books and who knows what else. He was ready for an adventure. I was ready to go to bed. But we had some pre-op appointments to make in LA.

It was a smooth and quick ride despite the exit at Prince Rd. being closed due to an accident. We could see the vehicle which looked like it rolled a few times. We decided to try the “economy parking” lot, only $4/day. Since it is December I wasn’t worried about covered parking. As we walked to the shuttle stop I could see the shuttle bus approaching.

With no bags to check we went straight to the security line. While we waited, the TSA guy chatted me up about the Red Sox and D’Backs since I was wearing my long sleeved Red Sox jersey. And so we soon sat waiting for the flight to board. I started Faithful Presence by David Fitch in preparation for my upcoming series on 1 Peter. I would read it throughout the day. I decided not to read any of the other two work books I brought. Eli was anxious; rocking, roaming, eating an apple and going to wash his hands (after I suggested the common sense idea).

There aren’t many direct flights to LA from Tucson these days, so it was the early flight. I decided not to buy a Chai and wait for the flight’s drink service for my caffeine- Coke. It was an uneventful flight as I read, he did some Minecraft on his tablet and the guy next to us slept on the short flight.

I love not having to go to baggage claim. I wasn’t exactly sure where the Shrine van would meet us. The corridor turned right, and there were doors to the curb in front of us. I saw a van, and the driver looked vaguely familiar. Finally I saw the name on the van and knew it was the right one. He mentioned calling twice, as if we were late or something. “We just got off the plane. I didn’t hear a call.”

And we were off to the Shriners’ Hospital for our 4 appointments. It was about 7:30 Tucson time, but 6:30 LA time. Even though I had the luxurious breakfast of peanuts, pretzels and Coke, I was still hungry. But first the van right, which seemed exceedingly bouncy. I was reminded of Trena’s “burping ‘Burbon” which made her kids puke. Tires? Shocks? Then I noticed the PSI light was lit.

Finally our bouncy ride was done. I thanked him, and noted the light. It was now time to check in. You might say we were early. No one else was waiting. After checking in we went by radio to wait. And read. And play Minecraft. I took a few texts for work-related stuff and read.

Finally it was 8:30 and the cafeteria was to open. Breakfast! I made sure I had cash (a rarity) since that is all they took. And we waited. They were a bit slow getting going. He picked scrambled eggs and bacon with juice while I had a breakfast of champions: bacon, hash browns and a Vanilla Coke. Sweet nutrition.

As we were putting our trays away, I heard his name being called. Figures…. We walked to the nurses station and they begin the preliminary work. The boy has actually gained 6 pounds since May. He has been eating like a horse, so it has paid off.

Then we waited. I read. “I’m bored!” He only had 42% of his battery left and he forgot to bring his charger. I noted the 20 lbs of toys & books. No go. So began the time of playing with medical stuff, rolling around on the stool and generally driving me crazy. We took a few walks up and down the hall to get ants out of pants, but there were too many ants. Way too many ants.

The doctors showed up late, at least 45 minutes for the first appointment. But they were all nice. The anesthesiologist talked about a new protocol they were using to reduce the use of narcotics by kids post-surgery. We would begin dosing him with painkillers on Saturday so they’d be in his system already. We’d have to chart us dosage post-surgery. He usually has a high pain tolerance and turns down pain killers after a day or two.

We talked about the surgery with Dr. Magee. They would be rotating some muscles in the back of the throat so he can fully close the airway connecting the nose and mouth. This way he can make all the sounds necessary to speak. Hopefully this helps more people understand him, and makes him less self-conscious. He will have to re-learn a few things. The opening will be smaller so he will snore (more than he already does) and have a hard time hocking a loogie to get excess mucus out.

There are risks. They will be working close to the spinal column and the carotid arteries. This is why they will do it at Huntington Hospital in Pasadena instead of the Shriners’ Hospital his last 3 surgeries have been in. Any future surgeries will likely be in the new outpatient surgical center they are building near Huntington Hospital in Pasadena.

Our flight was at 3:30 and the cafeteria didn’t open for lunch until 11. More waiting. I sat and read while he went to see “the show” they had. Apparently when they asked if any kids spoke English he didn’t raise his hand because most of it was in Spanish. The humor seemed similar to El Sabado Gigante, and he enjoyed the part when one guy kicked another in the bottom. Always gets the 10 year-old boy in the audience.

I got the meds, read and we went to the cafeteria for a far more affordable lunch than at the airport. He had spinach manicotti and a roll while I had chicken parm over linguini. And more Coke for me as I struggled to stay awake.

I saw the van driver and said we were ready when he was. He passed us off to another, younger guy. But they made sure he still got a gift. In addition to the bag, there was another item and he could choose another. One of the things I love about him is that he can be quite generous. He was thinking about which things his siblings would like. When he wasn’t talking to me about this I was talking to the driver. First about the new restaurants in the area (where were they in 2012 when I had to walk over a mile to Korea Town for dinner???), and the new facility.

One of the benefits of this ride was learning the LA method of “discreet” public urination. In Tucson, I’ve just seen guys “whip it out” by the bus stop. Yeah, public johnson sighting as I drove by. In LA the method, witnessed in two cases on this one ride, was to get close to the wall, or lamp post, to minimize any visuals of said johnson. Thinking of the children, obviously. Though I imagine it would splash all over your pants so pick your poison- public exposure or wet, stinky pants. Life in the big city has its charms.

I think it was my quickest ride to LAX ever! It was quite congested when we got there. Dropped off at Southwest we went to security. They sent us to the family line which was short. Okay, non-existent. “Whose printer did this?” he said. They worked in Tucson this morning, I noted. “That’s Tucson…” he said forebodingly. Sure enough, his boarding pass refused to be read. I tried to pull them up using the SW app. It also told me to go to the kiosk. Back down the stairs. Back up the stairs with a newly printed set of boarding passes. Through security and to the gate.

Back at the homestead …. Cody the Destroyer was digging again. I’d filled a hole this weekend. Well, back to the same basic spot. There is something about that spot that he really likes. If there was a rodent hole, we can’t tell because of the Cody hole. We have realized how difficult it is to get dirt out of artificial turf.

And so we waited back at the gate. Again. I read and he fidgeted. Another reference to the backpack full of books and toys. Nah. Eventually he wanted water. At lunch I bought him a bottle of water. He drank about 2-3 ounces before I had to throw it away before we got to security. Tired, and in need of even more caffeine I bought a Chai Latte and water.  Our plane was late arriving, but we were only about 10 minutes late departing.

Being at the end of the “B” group we were way in the back in the only 2 seats we could find together. He was happy to be able to use the tablet again. Tired of Faithful Presence and it’s overuse of the word “space”, I read some of War Room by Michael Holley about the Patriots and team-building. Our whirlwind trip to LA was nearly over.

We arrived on time and next came a classic Eli moment. It took us quite some time to get off the plane, so I asked if he needed to go potty. “Nope.” He then proceeded to remove the burden of his backpack and head into the men’s room.

The shuttle came quickly, we headed home. Nearly home, I got the text that one of the other children had become curious. “Hmmm, what will happen if I stick these metal tweezers into the outlet” kind of curious. Thankfully said outlet was in the bathroom and therefore GFCI. This meant the circuit broke before this child could electrocute themselves. Thankful for small mercies that result in big mercies. The tweezers were damaged, but the child was only traumatized as Dad explained the reality of electricity and conductors later that evening.

We arrived home to the dogs and fish since the others were at BSF. I checked the outlets, reset the breaker and then the GFCI outlet (both tripped) and reheated some pizza while I turned on the Patriots’ game. It was a good game except for the 14 seconds or so in which they allowed the Ravens to score 2 touchdowns.

And so we wait until Saturday when Amie and Eli head back for some pre-op appointments at Huntington Hospital.

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